Living with a PID during these difficult times At the start of the pandemic, we experienced that all-encompassing feeling of fear. We essentially locked ourselves away and became real-life Rapunzels, only we weren’t waiting for Prince Charming to come to rescue us from our towers. Now that the doors to our towers are slowly […]
Open Letter to Minister Simon Harris
Irish Primary Immunodeficiency Association Top Field Clonegath Fenagh Co Carlow. R21 X314 Mobile: Maria 0872369031 Email: pidinfo.ipia@gmail.com 6th June 2019 Minister Simon Harris, Department of Health, Office of the Minister, Block 1, Miesian Plaza, 50 – 58 Lower Baggot St., Dublin 2 D02 XW14 Dear Minister Harris, We in the Irish Primary Immunodeficiency […]
NEWBORN SCREENING
SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that babies born with SCIDs can have access to the earliest diagnosis possible allowing for successful and curable treatment. IPIA supports the Irish “Newborn Screening” for […]
IPIA Legal Status
IPIA Legal Status IPIA is now a registered company: “Irish Primary Immunodeficiency Association Company Limited By Guarantee” Directors: Martha Gouldsbury and Jim Colan Chairman: Rosa Aguiar Catraio Committee: Martha Gouldsbury, Jim Colan, Maria Colan, Yvonne Rooney,Paul Rooney,Pedro Romero and Rosa Catraio The objectives for which the company is established are as follows: To represent […]
