Dear IPIA Members As we approach the festive season and the dawn of a new year, we at IPIA want to reach each of you with warmth and gratitude. This past year has been a testament to the incredible strength of our rare disease community. Together, we’ve navigated challenges, celebrated victories, and supported one another […]
IPIA was at the XV IPOPI Global PID Patients Meeting in Lisbon
The XV IPOPI Global PID Patients Meeting took place on 24-27 October 2018, in Lisbon, Portugal. IPIA as a National Member Organisation (NMO) had the opportunity to take part in a stimulating meeting designed to inform the members, to facilitate interaction between members, to allow us to share experiences, learn from each other […]
Orlagh Woods- CVID my story
Orlagh Woods- CVID my story I wouldn’t say my diagnoses of CVIID was a ‘normal’ diagnoses. I wasn’t constantly sick when I was young, or on antibiotics every other week. When I was 14 I was brought to hospital after having a blood test done by my gp that resulted in me being diagnosed with […]
