Globally, there are significant disparities in the recognition and support given to patients with primary immunodeficiencies (PIDs). Even when these patients experience serious impairments (which may not always be visible), adult PID patients are often not deemed eligible for disability support. In light of this issue, IPOPI has recently released a position statement advocating that […]
Season’s Greetings 2022
IPIA wishes you a Happy Holiday Season & a Healthy New Year. Read our Newsletter by following the link
NEWBORN SCREENING
SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that babies born with SCIDs can have access to the earliest diagnosis possible allowing for successful and curable treatment. IPIA supports the Irish “Newborn Screening” for […]
Women’s Mini Marathon – 5th June, 2017
COME AND RUN WITH US GET SPONSORS OR SPONSOR OUR RUNNERS Register here Women’s Mini Marathon – 5th June, 2017 Please sponsor our runners All the money collected will be to organize, for all our members – Irish Patients with a Primary Immunodeficiency a FAMILY MEETING These meetings are very important to meet other patients with […]
IPIA May Newsletter
IPIA, sends out to all our members and contacts the monthly Newsletter, its a way to be in touch with you all and updating everyone of our actions and news around Primary Immunodeficiencies news locally and in the world. If you have not yet register please do so, by registering in the popup window […]
PID Classification: A mobile app to diagnose and classify PIDs
The app is available for download in the App Store and Google Play. A newly developed mobile app called Primary Immunodeficiencies App was presented during the 1st Maghreb and 9th Moroccan PID Congress in Casablanca. The app’s aim is to aid physicians better understand PIDs by helping with diagnosis and classification of the conditions. The app is […]
