Living with a PID during these difficult times At the start of the pandemic, we experienced that all-encompassing feeling of fear. We essentially locked ourselves away and became real-life Rapunzels, only we weren’t waiting for Prince Charming to come to rescue us from our towers. Now that the doors to our towers are slowly […]
IPIA was at the XV IPOPI Global PID Patients Meeting in Lisbon
The XV IPOPI Global PID Patients Meeting took place on 24-27 October 2018, in Lisbon, Portugal. IPIA as a National Member Organisation (NMO) had the opportunity to take part in a stimulating meeting designed to inform the members, to facilitate interaction between members, to allow us to share experiences, learn from each other […]
NEWBORN SCREENING
SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that babies born with SCIDs can have access to the earliest diagnosis possible allowing for successful and curable treatment. IPIA supports the Irish “Newborn Screening” for […]
IPIA Legal Status
IPIA Legal Status IPIA is now a registered company: “Irish Primary Immunodeficiency Association Company Limited By Guarantee” Directors: Martha Gouldsbury and Jim Colan Chairman: Rosa Aguiar Catraio Committee: Martha Gouldsbury, Jim Colan, Maria Colan, Yvonne Rooney,Paul Rooney,Pedro Romero and Rosa Catraio The objectives for which the company is established are as follows: To represent […]
Orlagh Woods- CVID my story
Orlagh Woods- CVID my story I wouldn’t say my diagnoses of CVIID was a ‘normal’ diagnoses. I wasn’t constantly sick when I was young, or on antibiotics every other week. When I was 14 I was brought to hospital after having a blood test done by my gp that resulted in me being diagnosed with […]
