Living with a PID during these difficult times At the start of the pandemic, we experienced that all-encompassing feeling of fear. We essentially locked ourselves away and became real-life Rapunzels, only we weren’t waiting for Prince Charming to come to rescue us from our towers. Now that the doors to our towers are slowly […]
World PI Week 10th Anniversary from 22nd – 29th April 2020 – Come and celebrate with IPIA
Follow the link to our Newsletter Checkout the 6-key-messages-on-immunoglobulin-therapies
Open Letter to Minister Simon Harris
Irish Primary Immunodeficiency Association Top Field Clonegath Fenagh Co Carlow. R21 X314 Mobile: Maria 0872369031 Email: pidinfo.ipia@gmail.com 6th June 2019 Minister Simon Harris, Department of Health, Office of the Minister, Block 1, Miesian Plaza, 50 – 58 Lower Baggot St., Dublin 2 D02 XW14 Dear Minister Harris, We in the Irish Primary Immunodeficiency […]
IPIA was at the XV IPOPI Global PID Patients Meeting in Lisbon
The XV IPOPI Global PID Patients Meeting took place on 24-27 October 2018, in Lisbon, Portugal. IPIA as a National Member Organisation (NMO) had the opportunity to take part in a stimulating meeting designed to inform the members, to facilitate interaction between members, to allow us to share experiences, learn from each other […]
NEWBORN SCREENING
SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that babies born with SCIDs can have access to the earliest diagnosis possible allowing for successful and curable treatment. IPIA supports the Irish “Newborn Screening” for […]
IPIA Legal Status
IPIA Legal Status IPIA is now a registered company: “Irish Primary Immunodeficiency Association Company Limited By Guarantee” Directors: Martha Gouldsbury and Jim Colan Chairman: Rosa Aguiar Catraio Committee: Martha Gouldsbury, Jim Colan, Maria Colan, Yvonne Rooney,Paul Rooney,Pedro Romero and Rosa Catraio The objectives for which the company is established are as follows: To represent […]
Women’s Mini Marathon – 5th June, 2017
COME AND RUN WITH US GET SPONSORS OR SPONSOR OUR RUNNERS Register here Women’s Mini Marathon – 5th June, 2017 Please sponsor our runners All the money collected will be to organize, for all our members – Irish Patients with a Primary Immunodeficiency a FAMILY MEETING These meetings are very important to meet other patients with […]
Wiskott-Aldrich Syndrome (WAS)
Wiskott-Aldrich Syndrome (WAS) The story of an Irish 5-year patient with WAS a rare genetic disease, a primary immune deficiency disease (PIDD). Keelan was 11 months old when he was diagnosed with WAS, an abnormal Immune System disease characterized by Eczema, low platelet count and a reduced ability to form blood clots. Treatment is […]
