IPIA is excited to announce that the 1st IPOPI clinical care webinar on “Advances in management and treatment of CVID” by Prof Klaus Warnatz, is taking place on 14th of November, from 2:00-2:30pm (UK time), Registrations are now open! You can register yourself for the webinar through this link! The webinar will take place online, and will be accessible […]
World Primary Immunodeficiency Week – Newsletter
IPIA WPIW Celebration – Family/Conference Meeting April 21st Dublin, Saturday 21st April, 2018 – The Irish Primary Immunodeficiency Association (IPIA) joined the efforts of organizations across the globe to promote awareness of primary immunodeficiency diseases during World PI Week, April 22-29. IPIA participates in worldwide initiatives to improve the recognition, diagnosis, treatment and quality of life of people with primary immunodeficiency […]
Primary Immunodeficiency in Ireland Equal Access to Home Therapy & Lifesaving Treatment – IPIA – Conference Meeting 2018
IPIA’s Press Relase Primary Immunodeficiency in Ireland Equal Access to Home Therapy & Lifesaving Treatment – IPIA – Conference Meeting 2018 – Dublin, Saturday 21st April 2018 – Today the Irish Primary Immunodeficiency Association (IPIA), a patient-led support group for patients with primary immunodeficiency (PID) invited all members, patients, and healthcare professionals to their annual conference […]
IPIA Family Meeting & Conference April 21st, 2018 @City West Hotel
NEWBORN SCREENING
SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that babies born with SCIDs can have access to the earliest diagnosis possible allowing for successful and curable treatment. IPIA supports the Irish “Newborn Screening” for […]
IPIA Legal Status
IPIA Legal Status IPIA is now a registered company: “Irish Primary Immunodeficiency Association Company Limited By Guarantee” Directors: Martha Gouldsbury and Jim Colan Chairman: Rosa Aguiar Catraio Committee: Martha Gouldsbury, Jim Colan, Maria Colan, Yvonne Rooney,Paul Rooney,Pedro Romero and Rosa Catraio The objectives for which the company is established are as follows: To represent […]
