The XV IPOPI Global PID Patients Meeting took place on 24-27 October 2018, in Lisbon, Portugal. IPIA as a National Member Organisation (NMO) had the opportunity to take part in a stimulating meeting designed to inform the members, to facilitate interaction between members, to allow us to share experiences, learn from each other […]
YOUR STORY WILL CONTRIBUTE TO BRING HOPE AND INSPIRATION TO OTHER PI PATIENTS
IPIA will love to hear your story. If you are a patient with a Primary Immunodeficiency please send us your story. All stories will be posted in our web page. Its important to share our stories. Sharing is caring, if we stay silent we can not make awareness or hope for new treatments. How many […]
WEBINAR – Advances in management and treatment of CVID” by Prof Klaus Warnatz
IPIA is excited to announce that the 1st IPOPI clinical care webinar on “Advances in management and treatment of CVID” by Prof Klaus Warnatz, is taking place on 14th of November, from 2:00-2:30pm (UK time), Registrations are now open! You can register yourself for the webinar through this link! The webinar will take place online, and will be accessible […]
“How I Got My Home Funding”
Orlagh Woods- CVID my story …. “How I Got My Home Funding” I’m now almost 22 and I’m still figuring things out as I go, especially when it comes to having CVID. Adapting to having a new normal was very hard. I spent majority of the past few years fighting with TDs, (members of Dàil […]
World Primary Immunodeficiency Week – Newsletter
IPIA WPIW Celebration – Family/Conference Meeting April 21st Dublin, Saturday 21st April, 2018 – The Irish Primary Immunodeficiency Association (IPIA) joined the efforts of organizations across the globe to promote awareness of primary immunodeficiency diseases during World PI Week, April 22-29. IPIA participates in worldwide initiatives to improve the recognition, diagnosis, treatment and quality of life of people with primary immunodeficiency […]
Oliver and Luke’s journey through their Bone Marrow Transplants at NewCastle-UK
Oliver and Luke’s journey through their Bone Marrow Transplants at NewCastle-UK Final Diagnose : Zinc Transporter Cell Defect My name is Colin and I’m here to share our family’s story on our 2 children Oliver and Luke’s journey through their bone marrow transplants in 2012 and 2013. I’ve tried to summarize this story into a […]
Primary Immunodeficiency in Ireland Equal Access to Home Therapy & Lifesaving Treatment – IPIA – Conference Meeting 2018
IPIA’s Press Relase Primary Immunodeficiency in Ireland Equal Access to Home Therapy & Lifesaving Treatment – IPIA – Conference Meeting 2018 – Dublin, Saturday 21st April 2018 – Today the Irish Primary Immunodeficiency Association (IPIA), a patient-led support group for patients with primary immunodeficiency (PID) invited all members, patients, and healthcare professionals to their annual conference […]
IPIA Family Meeting & Conference April 21st, 2018 @City West Hotel
IPIA Season Greeting 2017
Happy Holidays
NEWBORN SCREENING
SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that babies born with SCIDs can have access to the earliest diagnosis possible allowing for successful and curable treatment. IPIA supports the Irish “Newborn Screening” for […]
