IPIA, the Irish Primary Immunodeficiency Association, with the objective of raising awareness for those living with PI joined forces with various hospitals to celebrate World Primary Immunodeficiency Week 2023. With the grant received from IPOPI, IPIA purchased different materials/merchandise to give to PI patients and distribute among the public who visited the stand in the […]
World PI Week 2023 Celebration
JOIN US IPIA aims to enhance the quality of life and increase awareness among people with primary immunodeficiency. To further this cause, IPIA is collaborating with St. James Hospital in Dublin on April 27th and Children Health Ireland Crumlin in Dublin on April 26th. Additionally, Beaumont Hospital, Bon Secours Hospital in Galway, and Cork University […]
New statement: “Recognizing Primary Immunodeficiency Diseases (PIDs) as Disabilities: A Necessity for Those Experiencing a Heavy Burden of Disease”
Globally, there are significant disparities in the recognition and support given to patients with primary immunodeficiencies (PIDs). Even when these patients experience serious impairments (which may not always be visible), adult PID patients are often not deemed eligible for disability support. In light of this issue, IPOPI has recently released a position statement advocating that […]
PRESS RELEASE – The Minister for Health Stephen Donnelly has approved a recommendation from the National Screening Advisory Committee (NSAC)
We here at the IPIA – Irish Primary Immunodeficiencies Association (IPIA) are thrilled to share the news that The Minister for Health in Ireland has approved the addition of a 10th condition to the National Newborn Bloodspot Screening Program. This is a breakthrough, as it helps to ensure that the most vulnerable members of our […]
Season’s Greetings 2022
IPIA wishes you a Happy Holiday Season & a Healthy New Year. Read our Newsletter by following the link
World Primary Immunodeficiency (PI) week 2022
World Primary Immunodeficiency (PI) week #WorldPIWeek – is celebrated every year in April. This year was from 22nd to April 29th. The Irish Primary Immunodeficiency Association (IPIA) joined forces with St James Hospital & Children Health Ireland ‘Crumlin’ to help spread awareness about Primary Immunodeficiencies in Ireland. Early diagnosis and treatment can save lives, prevent […]
World Primary Immunodeficiency Week 2022
World PI Week 2021: Will you be striking a “Y” to support the primary cause of immunodeficiency? From the 22nd April to 29th of April 2021, people from around the world will celebrate the World PI Week campaign, to raise awareness and understanding of primary immunodeficiency. The ultimate goal is to bring about […]
Season Greeting 2021
Read our Newsletter follow the link below! https://mailchi.mp/028a163717dd/2021-seasons-greetings
IPIA News Letter October 2021
Living with a PID during these difficult times At the start of the pandemic, we experienced that all-encompassing feeling of fear. We essentially locked ourselves away and became real-life Rapunzels, only we weren’t waiting for Prince Charming to come to rescue us from our towers. Now that the doors to our towers are slowly […]
COVID-19 vaccines and PID
LATEST NEWS ON COVID 19 AND PID IPIA hopes that in this post you will find links with the latest information on the COVID19 vaccines and answers to frequently asked questions. IPOPI has recently published a recommendation for SARS-CoV-2 vaccination. To learn more, check the link available here. PID UK has also published Q&A that […]
