JOIN US IPIA aims to enhance the quality of life and increase awareness among people with primary immunodeficiency. To further this cause, IPIA is collaborating with St. James Hospital in Dublin on April 27th and Children Health Ireland Crumlin in Dublin on April 26th. Additionally, Beaumont Hospital, Bon Secours Hospital in Galway, and Cork University […]
Archives for April 2023
New statement: “Recognizing Primary Immunodeficiency Diseases (PIDs) as Disabilities: A Necessity for Those Experiencing a Heavy Burden of Disease”
Globally, there are significant disparities in the recognition and support given to patients with primary immunodeficiencies (PIDs). Even when these patients experience serious impairments (which may not always be visible), adult PID patients are often not deemed eligible for disability support. In light of this issue, IPOPI has recently released a position statement advocating that […]