IPIA, the Irish Primary Immunodeficiency Association, with the objective of raising awareness for those living with PI joined forces with various hospitals to celebrate World Primary Immunodeficiency Week 2023. With the grant received from IPOPI, IPIA purchased different materials/merchandise to give to PI patients and distribute among the public who visited the stand in the […]
Archives for 2023
World PI Week 2023 Celebration
JOIN US IPIA aims to enhance the quality of life and increase awareness among people with primary immunodeficiency. To further this cause, IPIA is collaborating with St. James Hospital in Dublin on April 27th and Children Health Ireland Crumlin in Dublin on April 26th. Additionally, Beaumont Hospital, Bon Secours Hospital in Galway, and Cork University […]
New statement: “Recognizing Primary Immunodeficiency Diseases (PIDs) as Disabilities: A Necessity for Those Experiencing a Heavy Burden of Disease”
Globally, there are significant disparities in the recognition and support given to patients with primary immunodeficiencies (PIDs). Even when these patients experience serious impairments (which may not always be visible), adult PID patients are often not deemed eligible for disability support. In light of this issue, IPOPI has recently released a position statement advocating that […]
PRESS RELEASE – The Minister for Health Stephen Donnelly has approved a recommendation from the National Screening Advisory Committee (NSAC)
We here at the IPIA – Irish Primary Immunodeficiencies Association (IPIA) are thrilled to share the news that The Minister for Health in Ireland has approved the addition of a 10th condition to the National Newborn Bloodspot Screening Program. This is a breakthrough, as it helps to ensure that the most vulnerable members of our […]
