SCID Newborn Screening SCID Newborn Screening Severe Combined Immunodeficiency (SCID) is the most severe form of PID and a paediatric emergency. Patient organisations around the world and IPOPI strive to ensure that babies born with SCIDs can have access to the earliest diagnosis possible allowing for successful and curable treatment. IPIA supports the Irish “Newborn Screening” for […]
IPIA Legal Status IPIA is now a registered company: “Irish Primary Immunodeficiency Association Company Limited By Guarantee” Directors: Martha Gouldsbury and Jim Colan Chairman: Rosa Aguiar Catraio Committee: Martha Gouldsbury, Jim Colan, Maria Colan, Yvonne Rooney,Paul Rooney,Pedro Romero and Rosa Catraio The objectives for which the company is established are as follows: To represent […]
COME AND RUN WITH US GET SPONSORS OR SPONSOR OUR RUNNERS Register here Women’s Mini Marathon – 5th June, 2017 Please sponsor our runners All the money collected will be to organize, for all our members – Irish Patients with a Primary Immunodeficiency a FAMILY MEETING These meetings are very important to meet other patients with […]
IPIA, sends out to all our members and contacts the monthly Newsletter, its a way to be in touch with you all and updating everyone of our actions and news around Primary Immunodeficiencies news locally and in the world. If you have not yet register please do so, by registering in the popup window […]
IPIA – Irish Primary Immunodeficiency World Primary Immunodeficiency Week – celebration 2017 – IPIA Committee family, Cake Sale with Raffle @ServiceSource Dublin and our Patient Stories, thank you for all donations, generosity, sharing and help to make this possible. Great week lets continue to make awarerness of PID Diseases.